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Why The 60-Second PRP Roadmap?

The 60-Second PRP Roadmap was written for three audiences of readers: PRP patients, PRP caregivers and
dermatologists. All three face the unique challenges of our ultra-rare skin disorder. That said, the 60-Second
PRP Roadmap focuses primarily on the patients!

PRP patients are the travelers

  • PRP is a unique journey from onset to someplace else.
  • As PRP patients, we have little or no control over the road ahead.
  • We are unwilling riders on a roller coaster that brings terror when we are most vulnerable.

PRP patients need not travel alone

  • We can travel with others who are willing to share what they have learned. We are kindred spirits.
  • The more we share, the more we learn. The more we learn, the less we fear.

PRP patients benefit from the experiences of other PRP patients

  • We lighten the burden of PRP by sharing that burden with the PRP global community.
  • We find emotional support from kindred spirits to minimize loneliness and feelings of isolation.
  • We find strategies with which to cope with pain, anxiety, stress, depression, and frustration.
  • We identify effective treatment options based on what has worked for others.

It’s all about the reader — YOU.

It’s All About The Reader — YOU.

Patient Perspective

The PRP Survival Guide has been a standalone website maintained by the PRP Alliance since May 2015. Hundreds of archived articles reflect the insights and observations of a thousand PRP patients and caregivers. There are  two questions the 60-Second PRP Roadmap seeks to answer:

  • What does a PRP patient or caregiver need to know?
  • What does a PRP patient or caregiver want to know?

Focus

What does a reader need to know? The 60-Second PRP Roadmap is a broad overview of the basics. Our goal is to make the most important information accessible, digestible and meaningful.

Lay Language

There is a time and place to use technical terms and medical jargon to explain PRP
… like medical school. However, a newly diagnosed PRP patient needs clarity, not technical terms and medical jargon. An effort has been made to keep the text simple. The Plain Writing Act of 2010 requires federal agencies to write “clear communication that the public can understand and use.” While we are not a federal agency, the 60-Second PRP Roadmap is written to be understood.

Subheads and Bullets

Subheads and bullets are like spotlights on a darkened stage that help readers navigate each page. The purpose of the “empty box” bullets is to help organize the flow of information and make it more digestible. Patients and caregivers are encouraged to check a box when reading something worthy of note.

60 Seconds Per Page

The average reading speed for learning is 100 to 200 words per minute (WPM). The 60-Second PRP Roadmap represents nearly 50,000 words. Depending on your reading speed, four to eight hours of information about PRP from the patient perspective will hopefully be time well spent.

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